Which link is broken?

When FDP started there was clear water between FDP and shared care records – ShCRs were for direct care, FDP for analytics. Any bridge between the two had to have a clear legal basis with CAG – the Confidentiality Advisory Group – guarding that bridge.

Somehow over time that’s changed and the FDP comms narrative now states “the main use of the Federated Data Platform will be for individual care, so the data for everyone who receives care in England will go into the platform, regardless of whether you have a national data opt-out in place”.

So details of your abortion, your mental health crisis, whatever will go into the FDP database with the patient not having any say, except if they ask the professional caring for them that it not be shared, placing the onus – and the burden – on them to make that call. Of course there will be controls on who can then access it, but if even the PSNI and the Met Police can’t keep their data secure…..

We simply do not learn from our past. Trust takes years to build but can be broken in a moment. The exemplary work of OneLondon public engagement programme showed that well informed patients understand the value of sharing for both direct care and analytics and are generally content but only if they can control whether to share. They may never exercise that control, but the fact that it’s there builds trust.

And although I absolutely get the potential value of data, at a time when we have crumbling RAAC buildings, a workforce taking industrial action over pay and some antiquated basic IT, is it really the best use of scare resources when we already have invested in tools which can do the job ?

Joe recalls TRS2; I’m left here thinking HS2, with a sprinkling of PPE.

That’s a great article, the only thing I’d argue with is “However well-intentioned the FDP undoubtedly is”.
Why would anyone assume that the FDP is well-intentioned – at least when all the dice seem loaded in favour of one potential bidder?
From the perspective of so many people outside the UK Central Government, Palantir is a data-mining solution from a company with dodgy links to elements within the USA’s espionage and law enforcement communities.
Let’s not forget that this is the same solution which has prompted this sort of article in the US
https://d1wqtxts1xzle7.cloudfront.net/56430372/Palantir_has_secretly_been_using_New_Orleans_to_test_its_predictive_policing_technology_-_The_Verge-libre.pdf?1524772881=&response-content-disposition=inline%3B+filename%3DPalantir_has_secretly_been_using_predict.pdf&Expires=1695153487&Signature=FRmEvnEdt50bd0B3EreBIGB7PununcVtXAJtm6RL9CbxX9dcD6sVkWA0pQiM5yNnP7josjapWWF8O9dLUliKZTwZod7J-kaO9rvjLyT~Lbl2VWg1A549PB-3Q2zoTrivuPxoaepUPx5SuYOPQDfG4ZAGv6lPGVhasgbcOisPy1yfbV0LKQQNRg0clk1NNADDLc13~NesWpIQVgxzB0FHRD7iOo~CyzomfWXvprFSAHPbO54fp0EPOdPifQqk7Ix~VRa8KxsFNegr-9PjFgNSpWu6oAhz23npLau1T-6qhXDMU3VdbccHdD6XDuea3RkF4~LCnuol71jz2VhoBnERTg__&Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA

Best wishes
Dave

https://www.whatdotheyknow.com/request/fdp_and_ndoo#incoming-2414189

Neil